2024 Presentations

Right click > "open image in a new tab" to view a larger version of this poster in a new tab. Presented in 2024 at the Muscular Dystrophy Association Clinical & Scientific Conference in Orlando, FL.
Time-to-event prediction in ALS using a landmark modeling approach, using the ALS Natural History Consortium Dataset
Presented by David Schneck, Andres Arguedas, Annette Xenopoulos-Oddsson, Ximena Arcila-Londono, Chris tian Lunetta, James Wymer, Nicholas Olney, Kelly Gwathmey, Senda Ajroud-Driss, Ghazala Hayat, Terry Heiman-Patterson, Federica Cerri, Christina Fournier, Jonathan Glass, Alex Sherman, Mark Fiecas, and David Walk.

Right click > "open image in a new tab" to view a larger version of this poster in a new tab. Presented in 2024 at the Muscular Dystrophy Association Clinical & Scientific Conference in Orlando, FL.
Treatment Patterns and Outcomes of Intravenous Edaravone–Treated People With Amyotrophic Lateral Sclerosis in the ALS/MND Natural History Consortium
2023 Presentations

Right click to view a larger version of the image in a new tab. A PDF version is also available. Presented in 2023 at the 22nd Annual Meeting of the Northeast ALS Consortium.
Time-to-Event Prediction in ALS Using a Landmark Modeling Approach, Using the ALS Natural History Consortium Dataset
Presented by David Schneck, Andres Arguedas, Annette Xenopoulos-Oddsson, Mark Fiecas, David Walk, and the ALS Natural History Consortium Investigators
Full abstract published in Muscle & Nerve [68(S1):S73-4 | Abstract #156]

Right click to view a larger version of the image in a new tab. A PDF version is also available. Presented in 2023 at the 22nd Annual Meeting of the Northeast ALS Consortium and at the 34th International Symposium on ALS/MND in Basel, Switzerland.
Time-to-event prediction in ALS using a semi-competing risks modeling approach, using the ALS Natural History Consortium dataset
Presented by Andres Arguedas, David Schneck, Annette Xenopoulos-Oddsson, Mark Fiecas, David Walk, and the ALS Natural History Consortium Investigators
Full abstract published in Muscle & Nerve [68(S1):S74 | Abstract #157]

Right click to view a larger version of the image in a new tab. A PDF version is also available. Presented in 2023 at the 22nd Annual Meeting of the Northeast ALS Consortium by Furey et al.
ALS Natural History Database Supports the Common Plateaus in ALS
Authors: John Furey, Terry Heiman-Patterson, Zachary Farber, and the ALS/MND NHC
Full abstract published in Muscle & Nerve [68(S1):S41 | Abstract #86]

Right click to view a larger version of the image in a new tab. A PDF version is also available. Presented in 2023 at the 22nd Annual Meeting of the Northeast ALS Consortium by Furey & Henderson et al.
Healthcare Disparities in ALS (2023)
Authors: John Furey, Zachary Farber, Taylor Plenty, Hannah Henderson, Xiaoning Lu, Daohai Yu, Terry Heiman-Patterson, ALS/MND Natural History Consortium
Full abstract published in Muscle & Nerve [68(S1):S26 | Abstract #50]
2022 Presentations

Right click to view a larger version of the image in a new tab. A PDF version is also available. Presented in 2022 at the 21st Annual Meeting of the Northeast ALS Consortium by Henderson et al.
Healthcare Disparities in ALS (2022)
Authors: Hannah Henderson, John Furey, Terry Heiman-Patterson, Ximena Arcila-Londono, Iram Zaman, Ghazala Hayat, Kelly Gwathmey, and additional investigators from the ALS Natural History Consortium
Full abstract published in Muscle & Nerve [66(S2):S27 | Abstract #59]
Retrospective analysis of prevalence and influence of cognitive involvement in ALS
Authors: John Furey, Terry Heiman-Patterson, and the ALS/MND Natural History Consortium
Full abstract published in Muscle & Nerve [66(S2):S34-5 | Abstract #75]

Right click to view a larger version of the image in a new tab. A PDF version is also available. Presented in 2022 at the 21st Annual Meeting of the Northeast ALS Consortium by Furey et al.
ALS Phenotype and Natural History Data from the ALS Natural History Consortium Clinic-Derived Cohort
Authors: David Walk, Alex Berger, Eric Macklin, Ervin Sinani, Matteo Locatelli, Natalia Tarasenko, Alex Sherman, and Investigators from the ALS/MND Natural History Consortium
Conference: 21st Annual Meeting of the Northeast ALS Consortium
Published: November 2022
In: Muscle & Nerve [66(S2):S56-7 | Abstract #126]