Publications by Consortium Member Investigators

The natural history of ALS: Baseline characteristics from a multicenter clinical cohort

Authors: Berger A, Locatelli M, Arcila-Londono X, Hayat G, Olney N, Wymer J, Gwathmey K, Lunetta C, Heiman-Patterson T, Ajroud-Driss S, Macklin EA, Bind MA, Goslin K, Stuchiner T, Brown L, Bazan T, Regan T, Adamo A, Ferment V, Schroeder C, Somers M, Manousakis G, Faulconer K, Sinani E, Mirochnick J, Yu H, Sherman AV, and Walk D.
Published: July 2023 (online) 
Journal: Amyotrophic Lateral Sclerosis & Frontotemporal Degeneration

Time-to-event prediction in ALS using a landmark modeling approach, using the ALS Natural History Consortium dataset.

Authors: Schneck D, Arguedas A, Xenopoulos-Oddsson A, Arcila-Londono X, Lunetta C, Wymer J, Olney N, Gwathmey K, Ajroud-Driss S, Hayat G, Heiman-Patterson T, Cerri F, Fournier C, Glass J, Sherman A, Fiecas M, and Walk D. 
Published: March 2025
Journal: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Risk prediction for ALS using semi-competing risk models with applications to the ALS Natural History Consortium dataset.

Authors: Arguedas A, Schneck D, Cui E, Xenopoulos-Oddsson A, Arcila-Londono X, Lunetta C, Wymer J, Olney N, Gwathmey K, Ajroud-Driss S, Hayat G, Heiman-Patterson T, Cerri F, Fournier C, Glass J, Sherman A, Walk D, and Fiecas M.
Published: April 2025
Journal: Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

Other Publications Using the Dataset

Identifying patterns in amyotrophic lateral sclerosis progression from sparse longitudinal data

Authors: Ramamoorthy D, Severson K, Ghosh S, Sachs K, Glass JD, Fournier CN, Herrington TM, Berry JD, and Ng K FE.  
Published: September 2022 
Journal: Nature Computational Science